Friday, August 25, 2017

Operation KICK ALS SITREP 251856ZAUG2017




SUBJECT: Operation KICK ALS SITREP 251856ZAUG2017, 1 ALSW, GEHRIG AFB, NY

To: CINCALSCOM

Cc:  POTUS, FLOTUS, FDOTUS, Gen. Bedlack, Richard, ALSWW, ALS-TDI, ALSA, PALS, POBF, Col. Dupree, Michele

GENERAL: ALS (amyotrophic lateral sclerosis) aka Lou Gehrig’s Disease strikes 3.9 in 100,000 civilians, yet members of the US military and veterans of same are twice as likely to be diagnosed with it no matter their age, race, or use of gender-neutral latrine. 

SITUATION: 15 years, 1 month, 21 days.

OPERATIONS: Continued decline in social/physical capabilities. AWP: Parts +24/7/365

INTELLIGENCE-RECONNAISSANCE: Perimeter checks discontinued, see Operations.

LOGISTICS: Supply chains unimpeded, save for
Southeast TX, Southwest LA.

COMMUNICATIONS-CONNECTIVITY: Continued ocular IR communications, However, limited d/t ocular strain.

PERSONNEL: ALS Functional Rating Scale score: 7 out of 45.

SIGNIFICANT POLITICAL-MILITARY-DIPLOMATIC EVENTS: SNAFU, Tango Uniform 

COMMANDER’S EVALUATION: Down time today: 18.5 hrs.  Transitioned to full reliability on mechanical ventilation as of 192215ZMAR2017. Now 3 months since significant cardiovascular event, possibly due to digoxin pharm induction. Caffeine eliminated d/t cardiovascular impedance.


Thursday, February 25, 2016

AthLeteS and ALS


ALS here in the United States is often referred to as "Lou Gehrig's disease", named for the "Iron Horse" of American baseball.  When Gehrig gave that iconic farewell speech at Yankee Stadium on July 4th of 1939, I wonder, was there any consideration given to the possibility of athleticism being a factor associated with developing ALS? 

Since being diagnosed in 2002 before age 40, I certainly didn't come anywhere near being called an athlete at any point in my life; a season of high school freshman football, B-team AMMO softball in the Air Force, you get my drift. But what about that time in my youth as a  lanky teen playing sandlot football, when I was knocked out after butting heads with an opponent?

Since diagnosis, I have seen all manner of possible links to developing the disease, and the athletes being diagnosed has me intrigued for some reason. Some of the theories:
  • smoking
  • military service 
  • immunizations 
  • trauma / concussion 
  • major surgery / spinal 
  • blue-green algae
  • heavy metals accumulation 
  • water contaminants 
  • genetic defect , hereditary and non hereditary 
  • pesticides 
  • athleticism??

Here's my list of athletes who have been diagnosed with ALS:

Bob Waters, football, Presbyterian, SF 49ers 
Bruce Edwards, golf, (caddie)
Charlie Wedemeyer, football, Michigan State University
Dandy Oskey, soccer, Oakland (MI) University 
Dwight Clark football, Clemson, San Francisco 49ers 
Eric Scoggins, football, SF 49ers, LA Express, Houston Gamblers (USFL) 
Fiona Vlasblom, Cycling, Roller Derby
Fred McNeill football, UCLA, Minnesota Vikings 
Glenn Montgomery, football, Houston, Houston Oilers, Seattle Seahawks 
Jeff Julian, golf
Jerome Golmard Tennis
Jim Barber, football, UCSB
Jim "Catfish" Hunter, baseball, A's, Yankees
Joost van der Westhuizen, rugby, South African Springboks

Kerry Goode, football, U. of Alabama, TB Buccaneers, Miami Dolphins
Kevin Thompson, Karate World Champion

Kevin Turner, football, Alabama, Patriots, Eagles
Lou Gehrig, football, baseball, Columbia U. (football scholarship), Yankees
Michael Lopez Jr., football, Oregon State, St. Louis Cardinals
OJ Brigance, football, Rice U., Lions, Stallions (CFL), Dolphins, Ravens, Rams, Patriots 
Orlando Thomas, football, University of Southwestern Louisiana (U. of Louisiana at Lafayette), Minnesota Vikings 
Peter Demmerle, football, Notre Dame 
Pete Duranko, football, Notre Dame, Denver Broncos  
Pete Frates, baseball, Boston College (Capt), Hamburg, Germany 
Rickey Dixon, football, Oklahoma Sooners, Cincinnati Bengals, L.A.  Raiders
Steve Gleason, football, New Orleans Saints
Steve Smith, football, Penn State, Raiders, Seahawks
Tim Shaw, football, Penn State, Panthers, Jaguars, Bears, Titans
Tom Kirchhoff, Lafayette, Philadelphia Eagles 
Tony Proudfoot, football, CFL, Montreal Alouettes, BC Lions 
Wally Hilgenberg, football, Iowa, Lions, Vikings 

In the famous 1966 10-10 tie between Michigan State and Notre Dame, each team had a player who developed ALS. MSU, #11, Charlie Wedemeyer. ND, #74, Pete Duranko.



If you know of any other collegiate or professional athletes who have or may have ALS, please drop me a line.

Monday, February 22, 2016

SITREP




SUBJECT: Operation KICK ALS SITREP 221156ZFEB2016, 1 ALSW, GEHRIG AFB, NY

To: CINCALSCOM

Cc:  POTUS, FLOTUS, MILOTUS, FDOTUS, Gen. Bedlack, Richard, ALSWW, ALS-TDI, ALSA, PALS, POBF, Col. Dupree, Michele

GENERAL: ALS (amyotrophic lateral sclerosis) aka Lou Gehrig’s Disease strikes 1 in 50,000 civilians, yet members of the US military and veterans of same are twice as likely to be diagnosed with it no matter their age, race, or use of gender-neutral latrine. 

SITUATION: 14 years, 1 month, 21 days.

OPERATIONS: Continued application of all resources available.

INTELLIGENCE-RECONNAISSANCE: NSTR

LOGISTICS: Supply chains unimpeded, save for wx

COMMUNICATIONS-CONNECTIVITY: Continued ocular IR comm, various applications.

PERSONNEL: ALS Functional Rating Scale score: 7 out of 45.

SIGNIFICANT POLITICAL-MILITARY-DIPLOMATIC EVENTS: SNAFU, Tango Uniform 

COMMANDER’S EVALUATION: Down time today: 19 hrs.  Beginning to feel more alien in my chair than in the bed. So thankful for the things I have to prevent skin breakdown as I am unable to turn myself. Only able to take small sips of coffee through straw. Still able to tolerate unassisted breathing while out of the bed, 96-98% O2. Use vent for all excursions out, but very rare due to intolerability, headaches etc.